Updated 15 June 2011
Email communications, newsletter, and related services
PBB provides you with the opportunity to receive communications from us. You can sign up for a free, optional email newsletter. You can unsubscribe from this newsletter at any time. If you have difficulties with PBB’s newsletter unsubscribe or subscribe service, please contact us and let us know about the problem. PBB will manually unsubscribe you from that newsletter in two to three business days.
Email communication that you send to PBB via the email links on our site may be shared with the PBB customer support staff, employee, medical expert, or agent that is most able to address your inquiry. PBB makes every effort to respond in a timely fashion once communications are received. Once we have responded to your communication, it is discarded or archived, depending on the nature of the inquiry.
The email functionality on the Site does not provide a completely secure and confidential means of communication. It is possible that your email communication may be accessed or viewed by another Internet user while in transit to us. If you wish to keep your communication private, do not use our email. This Policy does not apply to content, business information, ideas, concepts, or inventions that you send to PBB by email. If you want to keep content or business information, ideas, concepts, or inventions private or proprietary, do not send them in an email to PBB.
If you use PBB’s Email a Friend service to tell a friend about PBB’s Site, you will be asked for your name, your email address, and your friend's email address. Your friend will automatically be sent a one-time email inviting him or her to visit the Site using your name and email address as the "from" email address. PBB does not use your name, your email address, or your friend's email information for any other purpose. PBB only uses the information you provide to send the email you request.
PBB Connect™ service
You may need to provide personal information in order to use PBB’s optional Connect™ service (“Service”). This information may include answers to questions about your health status. Any personally identifying information collected as a part of the Service is stored in a secure system. PBB does not share this data.
You are responsible for ensuring the accuracy of information you submit to PBB. Inaccurate information will affect the information you receive when using the Service and our ability contact you.
PBB Patients Experiences
PBB staff document and share patient stories (“Stories” or “Story”) in the Patient Experiences section of the Site. Stories are used with permission and patients (“Patient”) who agree to be interviewed may be contacted by telephone or by email. Information collected to produce a Story may include answers to questions about Patient health status. Any personally identifying information is stored in a secure system. Patients who have agreed to be interviewed for a Story are given the opportunity to review the final Story and to have the Story published anonymously. Patient-approved Stories may be posted on the Site, incorporated into printed materials, or provided to selected media or other third parties. Patient information will not be shared without consent.
The Site may contain links to websites operated by third parties. PBB has no control over the privacy policies and practices of such third party sites, and if you have any concerns, you are urged to review the terms of those sites for more information about the policies applicable to those sites.
PBB uses general traffic, Site usage, and length-of-stay information in reports to sponsors and firms with which PBB has a business relationship. This sort of information is shared only in aggregate and does not personally identify you. For example, PBB might inform third parties regarding the number of users of the Site and the activities they conduct while on the Site. Depending on the circumstances, PBB may or may not charge third parties for this aggregate Information. PBB requires parties with whom we share aggregate information to agree that they will not attempt to make this information personally identifiable, such as by combining it with other databases.
Disclosure to contractors
PBB operations and support contractors sometimes have limited access to personally identifiable information in the course of providing products or services to PBB. These contractors include vendors and suppliers that provide PBB with technology and services for the operation and maintenance of PBB’s Site and customer support tools. Unless you have not signed up for PBB’s newsletter, these contractors also may have access to your email address to send newsletters.
Access to personally identifiable information by these contractors is limited to the information reasonably necessary for the contractor to perform its limited function for PBB. We require that PBB’s contractors 1) protect the privacy of personally identifiable information consistent with this Policy, and 2) not use or disclose your personally identifiable information for any purpose other than providing PBB with products and services.
This site is intended for adults age 18 and older. It is not intended for or designed for people under the age of 18. We do not collect personally identifiable information from any person we know to be under the age of 18.
Except as described in this Policy or as specifically agreed to by you, PBB will not disclose any personally identifiable information it gathers from you on our website or through the use of optional PBB services. PBB only releases personally identifiable information to third parties: (1) to comply with valid legal requirements such as a law, regulation, search warrant, subpoena, or court order; or (2) in special cases, such as in response to a physical threat to you or others, to protect property or defend or assert legal rights. In the event that we are legally compelled to disclose your data to a third party, we will attempt to notify you unless doing so would violate the law or court order.
Questions, problems, or complaints
If you have a question, complaint, or problem, please use our contact form or email us directly using firstname.lastname@example.org. Our customer service staff will forward your correspondence to the appropriate PBB staff person for a response or resolution. PBB tries to answer every email within 48 business hours, but may not always be able to do so. If you do not receive adequate resolution of a privacy related problem, you may write to PBB at:
Patients Beyond Borders
PO Box 17057
Chapel Hill, NC 27516 USA
Or call: +1 919 924.0636
Last updated on 8 August 2012